Join our march against NHS England plans to shut vital services at Royal Brompton

We’re inviting Royal Brompton patients, staff and supporters to take to the streets of Kensington and Chelsea on Saturday 18 March as part of the first public demonstration against NHS England’s plans to decommission congenital heart disease (CHD) services at the Trust. We’ve teamed up with two other charities associated with Royal Brompton Hospital, to organise the demonstration, which will begin at 10.30am at Dovehouse Green. The two-kilometre route will take in the Sydney and Fulham wings of the hospital as well as two of London’s busiest and most famous streets: Fulham Road and the King’s Road. Volunteers will provide refreshments at the start and end, and it is expected that some of the charities’ celebrity supporters will join the march. Key media have been invited to cover the event. Campaign badges and stickers are already available from the Charity Hub, next to the coffee shop at Royal Brompton. Demonstrators are being encouraged to wear red, and official T-shirts and banners will be available from the charities nearer the time. Our Chief Executive, Gill Raikes, said: “This will be the first opportunity for staff and patients, past and present, to gather together and show en mass that these ridiculous plans…

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Neon Night Run registration officially opens

Bask in the warm glow of giving – literally – by signing up for our first ever Neon Night Run on 7 March. Registration is now open! We’ve joined up with the wonderful Brunel Volunteers, of Brunel University, who have cultivated this spectacular event over the past few years. Brunel Volunteers work closely with local charities and organisations to develop and facilitate volunteering opportunities for students. We’re delighted that they have chosen to work with us this year and raise awareness of our hospitals among their student population and the local community. Students, staff and Charity supporters alike are encouraged to dig out their brightest clothing, cover themselves in neon paint (provided in the registration pack) and run a simple 5km course around the University campus. Kicking off at 7.30pm, the resulting effect is hundreds of glow-in-the-dark figures lighting up the dark March sky. We’ve been secretly working behind the scenes for the past few weeks to get everything ready, so we’re delighted to be able to announce that registration is now open. If you want to be part of this special event – which ends with a party at the University’s student union – then click here to sign...
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Donors gather for special hard hat tour of Intensive Care Unit extension site

Bright and very early last Friday morning, 25 of our very special donors joined us for a tour of the building site where, slowly but surely, Harefield Hospital’s Intensive Care Unit (ITU) extension is emerging from the ground Among the guests was former Mayor of Hillingdon, Councillor George Cooper, who donated a whopping £50,000 to the extension as part of his Charity appeal last year. Current Mayor Councillor John Hensley, who has kindly appointed us as his Charity of the Year, also attended to learn more about how his support will help save lives. After a tour of the building works on the ground floor, guests were taken up to a balcony for a bird’s eye view of the site. Over breakfast bacon rolls in the hospital’s auditorium, Peter Doyle, Divisional Lead Nurse and Associate General Manager of the heart division at Harefield Hospital, laid out plans for the Unit's sunshine therapy room. A nod to Harefield's heritage (see photograph), this innovative part of the project will give critically ill patients prolonged access to sunlight. Consultant Cardiologist Joyce Wong emphasised the need for the six extra bedrooms, which will allow an additional 250 patients to be treated on the unit each year....
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Public consultation on congenital heart services launched

Today, NHS England launched its much-delayed public consultation on the national congenital heart disease (CHD) review, including plans to withdraw CHD services from the Trust The consultation will run until 3 June 2017 and thousands of patients, their families and carers, support groups and charities are expected to attend stakeholder events and submit written responses. Despite our campaigning during the pre-consultation period, the plans that have been put out to public consultation fail to include a number of important details: • It does not explain how NHS England think patient care and outcomes to improve for current Royal Brompton patients. Without this, no one can assess whether the plan is in the interest of patients. • It does not explain what the total cost will be of transferring the care of the 14,000 Royal Brompton staff affected by this plan. Without this, no one can assess whether the plan is value for money, at a time when the NHS is under such huge financial pressure. • It completely ignores the impact of closing Royal Brompton’s world-leading adult CHD research unit. Any public consultation on future care quality that ignores the role of the world’s leading research institution in that field…

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British Heart Foundation report and the BBC highlight why our One Gene Appeal is so vital

BBC News today reported on a British Heart Foundation study that warns that 620,000 people in the UK have a faulty gene that puts them at risk of developing coronary heart disease or sudden death, and most are unaware. Royal Brompton Hospital is at the very forefront of diagnosing and treating these conditions, helping thousands of families affected. The Charity’s current One Gene, All the Difference appeal is raising money to expand the Genetics Testing Service to help many more people. The report said the figure was 100,000 more than had been thought and could be even higher. Cricketer James Taylor talked on BBC Breakfast about his own experience of being diagnosed with a serious heart condition called arrhythmogenic right ventricular cardiomyopathy (ARVC). He explained how his mother has since been tested and was found to have the same faulty gene but has a low risk of developing ARVC. She knows this thanks to genetic testing. This simply highlights why it is essential that we expand this service and why we need funds to continue this vital work. To donate today, please click here.

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Grand Winter Raffle raises a huge £12.5k for our hospitals

With prizes including holidays in Portugal and Cornwall, and hundreds of pounds worth of vouchers, it’s no surprise that our Grand Winter Raffle attracted staff, patients and visitors from right across the Trust. We’re delighted to announce the grand total of £12,500, which will go directly towards helping patients in our hospitals. The lucky winner of our fabulous first prize – a three-night five star luxury break in Portugal – was Raymond Jarvis from Plymouth. Raymond received a heart transplant at Harefield 13 years ago – what a worthy winner! The winner of our stellar second prize – £500 worth of Amazon vouchers – was Mrs Keerthisingham. The winning raffle tickets for the remainder of the prizes were: 3rd prize: One week self-catering cottage in Cornwall – 007011 4th prize: £250 worth of Marks & Spencer vouchers – 049495 5th prize: £50 worth of Sainsbury’s vouchers – 052978 6th prize: Handbag by Cataleya London – 02141 Thank you to everyone who bought tickets and well done to all our winners! We’d like to say a special thank you to Colletts Travel and The Conrad Algarve Hotel, Steven Lavery, Sainsbury’s Beaufort Street and Cataleya London for donating such wonderful prizes.

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