Posts Tagged "cystic fibrosis"

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Prince Charles visits Royal Brompton’s cystic fibrosis ward

Prince-Charles-and-staff-on

Yesterday, the Prince of Wales met patients and staff at Royal Brompton Hospital in his first official engagement as patron of the Cystic Fibrosis Trust.

Prince Charles visited Foulis Ward to meet patients being care for at Royal Brompton’s adult cystic fibrosis centre and to speak to clinicians involved in providing specialist treatment. The Prince also met support staff involved in the day-to-day running of the unit, which is one of the largest of its kind in Europe.

After unveiling a plaque to commemorate his visit, The Prince of Wales, said: “I am so delighted to have a chance of visiting the hospital and the unit here, which I know does such wonderful work on the cystic fibrosis front, but also I am so proud to become patron of the Cystic Fibrosis Trust in its 50th anniversary year.

One of the patients introduced to the Prince was 25-year-old chemistry graduate Nicholas Mason, from Sussex, who is currently on his fourth admission of the year and has spent many months of this year in hospital.

Nicholas-Mason-photo

Nicholas explained to Prince Charles that his lung function has dropped to about 20 per cent and he therefore needs to carry an oxygen cylinder everywhere he goes.

Nicholas said: “The Prince was very interested in the genetic cause of cystic fibrosis and I explained that both of my parents carried the gene, but had no way of knowing this until I was born.”

Royal Brompton Hospital established the UK’s first adult cystic fibrosis service in 1965, to provide treatment to the increasing number of patients living with the condition into adulthood. Since then, Royal Brompton has been responsible for the introduction of many treatment innovations that are now regarded as routine and was a model for the development of other centres in the UK and Europe.

Today, the multidisciplinary team, which includes consultants, specialist nurses, dietitians, physiotherapists, clinical psychologists and pharmacists, provide expert inpatient and outpatient care to almost 700 adults and 350 children and their families.

 

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'Still life with arteries and tulips' by Kate Hughes

Unique art exhibition by Royal Brompton cystic fibrosis patients

'Still life with arteries and tulips' by Kate Hughes

‘Still life with arteries and tulips’ by Kate Hughes

A unique exhibition - Safe Ground: An Unlikely Collaboration – has opened at the Sydney Street coffee shop, Royal Brompton. The display is a collaboration between artists, Anne Thompson and Kate Hughes, who both have cystic fibrosis and are patients at the hospital.

Anne and Kate cannot meet in person due to a risk of cross-infection, but their artistic partnership has flourished since being introduced via email by rb&hArts. The resulting exhibition showcases their individual works, as well as a distinctive joint piece, which was developed by being sent back and forth between them through the post.

Kate explains: “It makes the hospital about something more than just my illness. I feel that I have a new friend now in Anne, which is a difficult thing to happen when you both have cystic fibrosis because of the cross-infection risk. Living with the condition is often about the techniques we use to treat it and how we perceive it. I think that other people with cystic fibrosis will immediately recognise this and feel that someone else knows and shares some of what they are going through.”

The exhibition will be in Sydney Street coffee shop until Saturday 3rd May.

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Hollywood actor brings festive cheer to young patients

Prior to reading at the Charity’s Christmas Carol Concert on the evening of 19th December, actor Jamie Campbell Bower was kind enough to visit seriously sick patients on two of Royal Brompton Hospital’s wards.

Jamie chats with Harry, aged 8 on Royal Brompton's Rose Ward

Jamie chats with Harry, aged 8 on Royal Brompton’s Rose Ward

Jamie was given a tour of the hospital by the Charity and met several patients on Foulis (cystic fibrosis) Ward and Rose (children’s) Ward, chatting in-depth about football, his film career and just about anything the patients wanted to talk about!

Jamie was also very keen to express his support for the Charity and the amazing work of our two hospitals through the video below:

Many thanks to Jamie for taking the time out of his busy schedule to visit us.

To see more photos from his visit, see our Gallery. 

 

 

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Chance of a lifetime for Manchester United fans!

alex-ferguson

For the last year, Natasha Alkaff has been fundraising for our Charity in thanks for the lifesaving triple bypass and heart valve replacement carried out on her father by Harefield Hospital in September 2012.

Now, as an extra gift to the Charity she has decided to auction off ONE ticket to hear Sir Alex Ferguson, arguably the greatest football manager of all time, in conversation with lifelong United fan, Eamonn Holmes.

The ‘Audience with Sir Alex Ferguson’ event takes place at the Royal Festival Hall on Friday 1st November 2013, 7.30pm and includes a signed copy of his new autobiography.

Tickets to this event sold out very quickly, so this is the last chance for any committed United fan to see the great man in conversation this year.

NOTE: 100% of the final auction price will be donated to Royal Brompton & Harefield Hospitals Charity, so bid generously!

To bid for the ticket, visit the eBay listing.

More details about the event can be found on the Southbank Centre website.

 

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New ‘Hover’ lifting device good for patients and staff

Royal Brompton Hospital has just purchased a Hoverjack Patient Lifting Device, thanks to funds donated through the Charity’s Patient Amenities Fund.

Hoverjack Lifting DeviceThe new device, which was first used in the Hospital at the beginning of October, means that patients can be lifted safely and comfortably from floor level and transferred with minimal stress and pain to a hospital bed. It also reduces potential staff injury from manual lifting.

 

A video produced by the manufacturers shows just how versatile the new equipment is and the full range of benefits it will have for patients and nursing staff. 

 

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Annual Report 2012/13 out now

Annual Report 2012/13

Our Annual Report 2012/13 highlights the achievements we’ve made over the last year and the exciting and ambitious plans we have for the Charity in the future.

Browse or download your copy now.

 

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We value your opinion! – Join our Focus Group

opinion

Whether it’s developing a survey, creating new marketing materials or launching a new fundraising campaign, it’s important – particularly as a charity – that we do it right.

That’s why we really value the opinion of you, our supporters.

Could you help us by joining our online focus group?

All you need do is supply us with your email address and from time-to-time we’ll send you questionnaires, samples of materials and anything else we need testing or opinions on.

Your email address will only be used by the Charity and will never be passed on to third parties.You can opt out from the Focus Group at any time.

Email Nick Fry, Marketing and Communications Manager to join our Focus Group now.

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Christmas Carol Concert – Tickets now on sale

ColourAd

Tickets for our first ever Christmas Carol Concert are now on sale!

With readings from local dignitaries and celebrities, including Jane Asher and Betty Boothroyd, the evening promises to be a fun and festive warm-up to the big day.

Tickets are just £20 for adults (£10 10-16 year olds and free for under 10s.

 

The Carol Concert is proudly supported by:

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