Posts Tagged "cystic fibrosis"

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05.02.15

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Supporters on last year’s London Bridges Walk

 

I am always really proud of the charity team, but this week I am especially glowing.  We (well Philip McCarthy and Karen Taylor – I can take no credit) have secured £33,000 from the Heritage Lottery Fund to put towards our celebrations at Harefield to mark its centenary.  This is really splendid.  I am not sure if I know of any other NHS charity which has secured HLF before now so we may well be the first.  There are so many stories which are emerging about the last 100 years of Harefield Hospital.  It has an extraordinary history, from its roots treating wounded Australian soldiers in WWI, through its tuberculosis years, and on to being a pioneering heart and lung transplant surgery centre (led by the iconic Professor Sir Magdi Yacoub). Today it continues to be trailblazing, carrying out more heart, lung and dual transplants than any other UK hospital.  Alexander Fleming studied at Harefield, and the world’s longest surviving heart transplant patient is a Harefield patient – and what a wonderful character John Mccafferty is.

One of our first events to mark this extraordinary year is a reception at Australia House on Thursday 16th April.  With music, speeches and, of course, sumptuous surroundings, this is going to be a very special evening – do come and join us.

Royal Brompton has always been a ground-breaking hospital, especially in research into respiratory diseases.  Professor Eric Alton is leading some extraordinary new trials to find out more about how to treat the life-shortening disease cystic fibrosis.  Would you like to enter this amazing world of revolutionary research for an hour, hearing from Professor Alton on the latest medical developments?  Join our Audience with Professor Eric Alton on Thursday May 28th.

And last but by no means least, did you join us for our first ever London Bridges Walk last year?  Not only did we have a beautiful walk and raised funds for our important charity, but we really stepped out and felt the benefits of getting fit.  It was a lovely day last year and in June this year we are doing it all over again – I hope we have the same stunning weather! Book your places now.

 

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Prince Charles visits Royal Brompton’s cystic fibrosis ward

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Yesterday, the Prince of Wales met patients and staff at Royal Brompton Hospital in his first official engagement as patron of the Cystic Fibrosis Trust.

Prince Charles visited Foulis Ward to meet patients being care for at Royal Brompton’s adult cystic fibrosis centre and to speak to clinicians involved in providing specialist treatment. The Prince also met support staff involved in the day-to-day running of the unit, which is one of the largest of its kind in Europe.

After unveiling a plaque to commemorate his visit, The Prince of Wales, said: “I am so delighted to have a chance of visiting the hospital and the unit here, which I know does such wonderful work on the cystic fibrosis front, but also I am so proud to become patron of the Cystic Fibrosis Trust in its 50th anniversary year.

One of the patients introduced to the Prince was 25-year-old chemistry graduate Nicholas Mason, from Sussex, who is currently on his fourth admission of the year and has spent many months of this year in hospital.

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Nicholas explained to Prince Charles that his lung function has dropped to about 20 per cent and he therefore needs to carry an oxygen cylinder everywhere he goes.

Nicholas said: “The Prince was very interested in the genetic cause of cystic fibrosis and I explained that both of my parents carried the gene, but had no way of knowing this until I was born.”

Royal Brompton Hospital established the UK’s first adult cystic fibrosis service in 1965, to provide treatment to the increasing number of patients living with the condition into adulthood. Since then, Royal Brompton has been responsible for the introduction of many treatment innovations that are now regarded as routine and was a model for the development of other centres in the UK and Europe.

Today, the multidisciplinary team, which includes consultants, specialist nurses, dietitians, physiotherapists, clinical psychologists and pharmacists, provide expert inpatient and outpatient care to almost 700 adults and 350 children and their families.

 

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28.05.15 – An Audience with Professor Alton on cystic fibrosis gene therapy trials

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Royal Brompton Hospital is home to Europe’s largest cystic fibrosis unit and is a leading centre for research into this life-shortening, respiratory disease, which affects an estimated 10,000 people in the UK.

Professor Eric Alton, coordinator of the UK Cystic Fibrosis Gene Therapy Consortium (which includes centres in Edinburgh, Oxford and London) will be leading this lecture and talking about recent trials that are providing new insights into how the disease could be better treated.

We apologise, but this talk has had to be postponed.
A new date will be advertised in due course.

Date: Thursday 28th May
Time: 6.30pm
Venue: Imperial College, Royal Brompton Campus (corner Dovehouse Street / Cale Street)
Cost: FREE

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'Still life with arteries and tulips' by Kate Hughes

Unique art exhibition by Royal Brompton cystic fibrosis patients

'Still life with arteries and tulips' by Kate Hughes

‘Still life with arteries and tulips’ by Kate Hughes

A unique exhibition – Safe Ground: An Unlikely Collaboration – has opened at the Sydney Street coffee shop, Royal Brompton. The display is a collaboration between artists, Anne Thompson and Kate Hughes, who both have cystic fibrosis and are patients at the hospital.

Anne and Kate cannot meet in person due to a risk of cross-infection, but their artistic partnership has flourished since being introduced via email by rb&hArts. The resulting exhibition showcases their individual works, as well as a distinctive joint piece, which was developed by being sent back and forth between them through the post.

Kate explains: “It makes the hospital about something more than just my illness. I feel that I have a new friend now in Anne, which is a difficult thing to happen when you both have cystic fibrosis because of the cross-infection risk. Living with the condition is often about the techniques we use to treat it and how we perceive it. I think that other people with cystic fibrosis will immediately recognise this and feel that someone else knows and shares some of what they are going through.”

The exhibition will be in Sydney Street coffee shop until Saturday 3rd May.

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Hollywood actor brings festive cheer to young patients

Prior to reading at the Charity’s Christmas Carol Concert on the evening of 19th December, actor Jamie Campbell Bower was kind enough to visit seriously sick patients on two of Royal Brompton Hospital’s wards.

Jamie chats with Harry, aged 8 on Royal Brompton's Rose Ward

Jamie chats with Harry, aged 8 on Royal Brompton’s Rose Ward

Jamie was given a tour of the hospital by the Charity and met several patients on Foulis (cystic fibrosis) Ward and Rose (children’s) Ward, chatting in-depth about football, his film career and just about anything the patients wanted to talk about!

Jamie was also very keen to express his support for the Charity and the amazing work of our two hospitals through the video below:

Many thanks to Jamie for taking the time out of his busy schedule to visit us.

To see more photos from his visit, see our Gallery. 

 

 

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Chance of a lifetime for Manchester United fans!

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For the last year, Natasha Alkaff has been fundraising for our Charity in thanks for the lifesaving triple bypass and heart valve replacement carried out on her father by Harefield Hospital in September 2012.

Now, as an extra gift to the Charity she has decided to auction off ONE ticket to hear Sir Alex Ferguson, arguably the greatest football manager of all time, in conversation with lifelong United fan, Eamonn Holmes.

The ‘Audience with Sir Alex Ferguson’ event takes place at the Royal Festival Hall on Friday 1st November 2013, 7.30pm and includes a signed copy of his new autobiography.

Tickets to this event sold out very quickly, so this is the last chance for any committed United fan to see the great man in conversation this year.

NOTE: 100% of the final auction price will be donated to Royal Brompton & Harefield Hospitals Charity, so bid generously!

To bid for the ticket, visit the eBay listing.

More details about the event can be found on the Southbank Centre website.

 

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New ‘Hover’ lifting device good for patients and staff

Royal Brompton Hospital has just purchased a Hoverjack Patient Lifting Device, thanks to funds donated through the Charity’s Patient Amenities Fund.

Hoverjack Lifting DeviceThe new device, which was first used in the Hospital at the beginning of October, means that patients can be lifted safely and comfortably from floor level and transferred with minimal stress and pain to a hospital bed. It also reduces potential staff injury from manual lifting.

 

A video produced by the manufacturers shows just how versatile the new equipment is and the full range of benefits it will have for patients and nursing staff. 

 

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Annual Report 2012/13 out now

Annual Report 2012/13

Our Annual Report 2012/13 highlights the achievements we’ve made over the last year and the exciting and ambitious plans we have for the Charity in the future.

Browse or download your copy now.

 

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